Yesterday morning, we realized Brayden's G-J tube was cracked. His G-J tube is the only way he gets food/fluids. Having a crack in it is not good. We immediately called the doctor. They got him in with the Pediatric Radiologist that works with the G-I doctors.
Brayden's G-J tube has been changed out many, many times. We know the routine. Brayden on the table. Large wire into the tube. Deflate the water balloon that holds the tube in. Old tube slides out with wire as the guide. New tube slides on with the wire as the guide. Water balloon is filled. Tube fixed in place. Done.
This time....as they were pulling out the old tube, the realized the new tube was not the correct length. It was almost 6 inches shorter and that is a big difference. Brayden laid on the table, with a big hole in his stomach, for a bit, while they got the proper tube.
The new tube was put in to place but was having some difficulties, then more difficulties, then more difficulties. His intestine did not want the tube. Once it started to go in, it would shoot back out. And I mean shoot out. The tube would come shooting out of Brayden's stomach on to the table. Or it would coil up into his stomach. Not good.
A 5 minute procedure (if that) was probably 75 minutes and that is only when I started watching the clock.
The radiologist worked and worked to get it to stay in place. He was actually starting to sweat! Several times, he said he did not know what to do and may need to stop. Yikes! I was concerned that Brayden was going to be admitted to the hospital. Things were not going well.
I just prayed over and over, Please get it in, please get it in, please get it in. I do not want him to be in the hospital again.
Finally after a very, very slow placement of the tube, his intestine and stomach were fine and the tube stayed in place. Brayden laid on the table for a bit more for the doctor to watch the tube and make sure it would stay. It did and we were sent home.
That was the most stressful tube change we have ever had.
Amazingly the tube being shoved in and out of Brayden's stomach only upset him a little bit and actually slept the last half hour of it. I, on the other hand, was a bit more upset than him.