I have been collecting charts, data, letters, forms, notes from phone calls and meetings.
Trying to understand the waiver/insurance deciding to cut Brayden’s nursing AND attendant hours. Saying that he did not meet their requirements.
Here is the BIG problem.
Brayden costs too much. Brayden is a liability. No one wants to take responsibility for Brayden and those like him.
We are seeing this with insurance/waiver, the school system, programs that work with special needs kids and basically everything else. To all of these, Brayden costs too much, he is a liability and no one wants responsibility for such a high cost, medically fragile child.
As many know, the Republican and Democrats on the Federal and on the State level have been arguing Healthcare reform for many years. Obamacare, ACA, was doomed to fail because there was no real way to pay for it (the medical community and insurance companies found it to be too costly). But I will tell you a lot of it had good intentions. It required coverage for pre-existing conditions, removed lifetime caps, included treatment for mental health and chronic diseases. It also expanded Medicaid, which is Brayden’s secondary insurance. Yes, there were many troubles with Obamacare. But I really do not see the Republicans plan, as much better, some trying to leave decisions in the hands of the insurance companies or the state to decide. Insurance companies could charge more for pre-existing conditions or possibly be denied. States could decide if insurance companies could have that power. Also the potential Republican plan is looking to make large cuts to Medicaid programs, this is a hot button issue. I think many see Medicaid as supporting those is poverty or unemployed or leaches to the system. Medicaid is so much more than that and includes those in every walk of life. Brayden’s waiver/Medicaid program has been a vital part of his care and health. He is on a program through Virginia that gives him access to Medicaid as a secondary insurance.
With all of the current troubles we are having with Brayden’s insurance and waiver, I am fearful. Fearful that the world is quantifying what some is worth; laws and insurance get to make that decision. Who qualifies for treatment, medical attention, etc.?
And guess what? Health insurance is heading that direction.
As I said in the beginning of this blog: We all have a pre-existing condition, most just do not know it yet.
***Disclaimer, I gave a VERY basic outline and my personal highlights/thoughts of ACA and the Republican plans that have been in the works. They are still working on all of it, so wording gets changed. There is a lot of push and pull from both sides of the isle. It is happening on your state level, how they will use funds. And happening on the federal level. I want everyone to understand how important Healthcare is, something can and will happen to your family. Looks at both sides of the Healthcare arguments, through the lens of what if this happened to me, to my loved ones.
And side note, if you have watched Man in the High Castle - discussions around Healthcare worry me to the level of Thomas Smith, Obergruppenfuhrer Smith's son, with a pre-existing condition.