I just got off the phone with one of Brayden's doctors. We have been waiting for the lab results from the stool samples (remember we had to collect many containers of it at home). I was hoping to get the lab results this week. The GI and pediatrician's office contacted the lab. The lab has NO record of it. Nothing. The stool that we collected and dropped off is no where to be found. The lab made a mistake and lost it all.
We have to collect poo again.
Early today, Brayden saw his neurologist. No surprise, Brayden has lost weight since the last visit. The doctor is willing to let us explore the pancreas before changing Brayden's ketogenic diet (for seizure control). The surprise was that Brayden's head was measuring smaller. The doctor measured 4x to check, to make sure she did not make a mistake. Then checked the Children's database from his other appointments in the past year. Yes, the measurement was definitely smaller at 41.5 cm. What does that mean? The neurologists said maybe he is loosing brain matter (something degenerative)...it could be a loss of weight that could make his head slim down...his head could of changed shape. His head will be measured regularly to see what happens.
Brayden's already small head is getting smaller?