I spoke to the pediatrician today about the lab results from Brayden's stool sample.
The majority of the results are back. It is clear that Brayden is not absorbing food because his pancreas is not working properly. Pancreatic enzymes should be above 200 and below 100 is severe insufficiency. Brayden's came back at 102.
It seems as though Brayden's pancreas works in some ways but not others. His blood sugar is always within the normal range (we check it at home regularly because of the ketogenic diet). But the enzymes used to break down and absorb food are not.
What does this mean?
The simple answer is to give Brayden pancreatic enzymes. I am guessing that this is something we can give like medication or add to his food. The GI doctor is back in the office next week and we will talk to him about the next steps.
Brayden's pancreas will continue to be watched carefully. The stool sample provided a baseline and we can start comparing. We hope that the pancreas is not progressively getting worse and that the enzymes will help Brayden absorb food properly (or at least better) so that he can start gaining weight.
Brayden's next appointment with the ketogenic clinic is in early February...we have until then to figure it out, get him gaining weight...otherwise they will start taking him off the ketogenic diet (which we do not want because it has been amazing for his seizure control).