Yesterday afternoon was quality time at Children's in DC for the ketogenic clinic.
There we saw the nutritionist and the neurologist that runs the keto clinic.
Brayden is keeping everyone perplexed...
Problem 1 - he is not gaining weight. In fact he lost weight; down 29 lbs to 27 lbs.
Answer - trying to increase he calories...yet again.
Problem 2 - his kidneys. The urinalysis is showing high levels of calcium. He does have a kidney stone in his kidney.
Answer - seeing a nephrologist to really have his kidneys looked at. Also adding more fluid to his diet and a prescription for Bicitrate (not really sure what that does yet). And weaning him off one of his seizure medications, Topomax, that could cause kidney problems.
Problem 3 - despite the 4.25 to 1 ratio of the ketogenic diet, Brayden's urine testing is showing that he is not in ketosis (the whole point of the diet).
Answer - a blood test. The urine test may not give accurate results since his kidneys may not be functioning properly or so the dr explained to me. He formula mixture may need to be altered.