Brayden has officially been admitted to Children's National today. He will be there for the majority of the week to start the ketogenic diet. While the diet is primarily for seizure control, Brayden's GI issues cause concern and will be closely monitored for any red flags.He was started late this afternoon on a mixture of the food he will get via j-tube and will work up to the proper ratio.
Tomorrow, we will be trained on how to carry out the diet at home, as well as the tests to monitor him.
We have been to this hospital many, many times; inpatient in the old GI wing and many outpatient procedures...this is the first time on the newer neurology wing. Brayden has a large private room, with private bathroom, two recliners and a couch (still the hospital like but better), a flat screen TV...need I say more. It is a far cry from his other hospital stays at Children's. He can even wear pajamas instead of a gown.
Brayden has been very compliant all day, not much bothering him.
10 comments:
Hope the week goes well...thinking of you guys.
thanks for updating! i've been thinking about you!!!
Good luck! I'm happy that you have a nice room with some feelings of home.
Praying that everything goes well!!!
The bottom photo is beautiful. I hope the week goes by quickly for you. I am excited to hear about the results.
Praying your stay goes well and that this new diet does wonders! Cute, cute pictures of your sweet boy! HUGS!!!
glad you have a nice room! Hope the rest of the week goes well!
cutie pie!
praying this is it!
best of luck with it all, i hope it works for brayden xxx anne
Praying the week goes smoothly and the diet takes care of all his seizures.
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