I got a call this morning from Brayden's school nurse. She wanted to check and make sure Brayden was doing okay. The nurse was concerned because he was literally looking blue.
Do not adjust the color on your screen. His feet and hands are this color...blue/purple.
Some days he does not have proper circulation. It is like his brain does not seem to be telling his body to get blood to his hands and feet. Then when it does, it seems to over compensate and pump so much blood that his hands or feet get really swollen and red.
It never looks good and it always concerns people (especially random strangers in stores who like to offer their insight). We try to rub his hands and feet to help. It is not about him being cold or hot. Without any known cause he has days when he is fine and others he may be purple or red. We have talked to all of his doctors about this and they have yet to offer any insight.