Friday, April 9, 2010

Home, last night

Brayden was discharged last night.

He was discharged at 5:00 p.m. The worst possible time for DC metro area traffic. Brayden and I were in the car for almost 2 hrs 45 minutes before we pulled into the garage. Brayden just seemed happy to be out of the hospital.

He is home.

His hospital stay was mostly uneventful. He tolerated the ketogenic diet fairly well. A few things that we need to check on but nothing too bad.

Brayden seems to have a seriously low heart rate and pulse ox several times during his sleep. Thankfully he is able to recover on his own but a few times they did put him on oxygen. We will talk to his regular doctors about this since it does not seem to be ketogenic diet related. He lipase levels (pancreas) are elevated but not sure if that is normal for him so we will visit the GI doctor.

He was stuck so many times for blood that it looked like Luke played doctor and covered him with band aids. Just about every nook and cranny was used for blood. Brayden only fussed for a moment with each stick...apparently getting too used to it all.
Last night and this morning was my first go at the measuring of the diet, glucometer and ketostix. A little stressful trying to figure it all out because this diet is so precise. We had a nurse out this morning to go over things and check him as well. So far so good but I am hoping that I will get the hang of things quickly.


Debbie said...

Glad to hear you are home....nothing better than that moment after sitting for days in the hospital.

Have you seen any positive changes in seizures at all? I know it takes a while, but I am certainly praying you all get relief through this diet. I know it is stressful in the beginning but you will get the hang of it...just like everything else we learn in this crazy medically complicated world of ours!

Shannon said...

Welcome home!! I am sorry you had to battle rush hour traffic, but I am so glad you are all in the comfort of your own home.

Junior said...

Happy to hear you are home. Hope the diet makes a big difference in his seizures and goes smoothly. Junior was on it for 6 years.

The VW's said...

Glad you are home again! Sorry about all the 'pokes' Brayden! You are such a brave boy! Praying the new diet goes well for both of you! Love, Hugs and Prayers!!!

April said...

Good luck settling into the new routine!

Michelle said...

so glad you are all home.