Brayden was discharged last night.
He was discharged at 5:00 p.m. The worst possible time for DC metro area traffic. Brayden and I were in the car for almost 2 hrs 45 minutes before we pulled into the garage. Brayden just seemed happy to be out of the hospital.
He is home.
His hospital stay was mostly uneventful. He tolerated the ketogenic diet fairly well. A few things that we need to check on but nothing too bad.
Brayden seems to have a seriously low heart rate and pulse ox several times during his sleep. Thankfully he is able to recover on his own but a few times they did put him on oxygen. We will talk to his regular doctors about this since it does not seem to be ketogenic diet related. He lipase levels (pancreas) are elevated but not sure if that is normal for him so we will visit the GI doctor.
He was stuck so many times for blood that it looked like Luke played doctor and covered him with band aids. Just about every nook and cranny was used for blood. Brayden only fussed for a moment with each stick...apparently getting too used to it all.
Last night and this morning was my first go at the measuring of the diet, glucometer and ketostix. A little stressful trying to figure it all out because this diet is so precise. We had a nurse out this morning to go over things and check him as well. So far so good but I am hoping that I will get the hang of things quickly.