I have not blogged much this week because things have been busy.
A good busy, for the most part.
The week started with a meeting about developing a fully accessible park in our county. I have been thinking, researching, googling a million ideas. We met with a playground equipment company to help give us some ideas and hopefully direction. Still so many things to be decided to even decide if we can pull this off.
On and off throughout the week, I have been on the phone with Children's. We are now scheduled for Brayden to enter the hospital in April to start the ketogenic diet. He will be in the hospital a bit longer than typical keto kids because of his G-I history and pancreatitis...all of which will be watched closely.
Because Brayden's medical needs have changed so much in the past couple of years, the waiver that he is currently on is being re-evaluated, with the idea to update to his current medical status. This is a pain. No one seems to know the correct process. I have talked to countless people...way too much time on the phone.
Yesterday I had a meeting to discuss ideas about collaborating on a book. A book that would share three stories. Each story from a mom of a special needs child and navigating their life. I am not sure where this project is heading but it is a possibility.
Not to mention our regular activities for Carter and Luke...Brayden's appointments, etc.
Today, I will actually run to grocery store and some other errands and it happens to be the day when it is pouring down rain!