Sunday, April 10, 2011
Never Mind - B is back in the Hospital
We headed right into radiology (where Brayden has had many g-j tubes changes in the past). A tube change is done on a radiology table with barium and a wire to help watch and guide the tube into the stomach and on into the intestine.
A radiologist came in and tried to get the tube properly placed...tried for too long without any success. The radiologist called for another radiologist (who had done a tube for Brayden in the past). The second radiologist tried...nope, nothing. That radiologist left to call another doctor to find out what needed to be done. The first radiologist came back and tried again...still did not get it in.
Did I mention Brayden is awake while they force a long tube in and out of a whole on his stomach? At some point we could see that Brayden was exhausted and just gave up.
The GI doctor was planning to schedule the j-tube surgery for the following morning. However, the surgeon refused, absolutely refused, to do the surgery...he believes j-tubes bring too many complications. The GI doctor agreed to try and place the g-j tube endoscopically, which she originally refused to do because it is very rarely successful.
I drove back to the hospital in the morning with Carter and Luke to meet Jeremy. Brayden was already in the OR with the GI doctor for the endoscopy. Jeremy and I waited while Carter and Luke played. About an hour later the Gi doctor emerged and said that she was unable to place the g-j tube. However, another radiologist (who has changed B's tube a few times in the past too) was available to try.
He was wheeled to radiology and the procedure started (I am allowed to be the room for this). The radiologist had a poker face. I could not tell if he was making progress or if he was having difficulty. Finally the radiologist said, "Alright." I am thinking...all right good, all right bad? The radiologist placed the tube in the proper place. Brayden now had a shinny new g-j tube.
He was wheeled back to the PACU and then up to his room. We met with the GI doctor and she was comfortable discharging him, as were we...confident that the tube placement was working.
Brayden arrived home about 6:30 p.m. on Saturday.
Saturday night/Sunday morning.
Brayden was in bed at 7:00 p.m., meds given through the new g-j tube and he feeding was hooked up for the night. Jeremy and I crashed in bed at 7:45 p.m. I awoke about 11:00 p.m. to Brayden coughing. I just assumed that he was coughing from being intubated that day. I dosed off for a bit and realized that Brayden was still coughing. I jumped out of bed and could smell his formula before entering his room. I flicked on the lights and found Brayden laying in a pool of vomit. He was vomiting his formula, which should be impossible since the tube should be in the intestine...which means the tube probably crept up into his stomach. By this time is was 12:15 a.m., we called the GI doctor at the hospital, she told us to start heading in. Jeremy gave Brayden a bath while I got ready and we were on the road by 12:30 a.m.
Arrived at the hospital and admitted back into the same room. Brayden started vomiting again, this time blood. An IV attempt that failed and then an IV that stayed. A chest x-ray to check if he aspirated from vomiting. An abdominal x-ray to see the g-j tube placement. By about 4:00 a.m. we turned off the lights in the room for a couple of hours of sleep.
Brayden vomited more blood, yet another linen change. Then the GI doctor came to the discuss the evening events. The abdominal x-ray showed that the tube was not properly placed. She removed the g-j tube and put in a temporary g-tube and is venting his stomach through the g-tube (stomach).
The plan is yet to be determined.
Today we watch to make sure he does not continue to vomit blood. Tomorrow we will speak with the GI doctor and another surgeon about surgery for a j-tube.
Please pray that we find a good, long-term solution that will benefit Brayden's health and feeding.