Brayden was there today for his spine and hips. Brayden has always leaned to his left, partially because of his disposition, seizures and comfort. Since the fall we have started to notice his spine was curving too much. We position him, prop him, etc. to help but without much progress.
His sternum is protruding too much and starting to cause pressure sores. Because of his weight loss, his hip bones are sticking out the back (it also does not help that Brayden had no bottom to start with)
Then Brayden's hips/legs have been extremely tight for the past several weeks.
We went to the orthopedist ready with questions and a note from Brayden's physical therapist explaining the concerns. Talked with the doctor and she ordered x-rays, which thankfully are done right in the office.
Once the x-rays were ready, we reviewed them and could clearly see the curve. The orthopedist talked about it but not enough to my satisfaction. The solution the Dr offered was a better wheelchair with more support and wrote prescription for a new wheelchair. However, Brayden does NOT spend his days in the wheelchair, nor do I want him to. He still leans in bed, when held or any other time.
As for his legs, the Dr. immediately (and rather insistently) recommended Botox. Botox is often used for children with cerebral palsy. However, I am not convinced this is an option for Brayden. The tightness in his legs has only been happening for a couple of months and we can relax them with effort, although the legs do not stay relaxed. Botox is temporary, lasting for 3-6 months, and would possibly need to be done with growth spurts or additional tightness. Also, in order to get Botox the children must be sedated each time.
This orthopedist is well known and well respected. However, she is an orthopedist...if things are broken then it is to be fixed...very black and white...problem to a solution, and Brayden is not a black and white case...things are very gray.
Needless to say, I left the appointment feeling frustrated. I called around to some friends with special needs kiddos to find out more and spoke to Brayden's pediatrician, who helped us set up an appointment with another orthopedist, this time from Children's, whom we will see in March (long waiting list).
Brayden has enough things to deal in a day, adding spine and leg problems is something we are trying to avoid.