Friday, January 7, 2011

The Nightlife

Remember those care free days of a late dinner, night out with friends, sleeping in the next day...

Well those days are a very distant memory, as any parent would tell you. Now, dinner is early, bedtime for kids is usually a long drawn out process (not matter what you do when they are little); after the kids go to bed, you go to bed shortly after because you are wiped out, and the kids will be up bright and early the following morning and you have to start it all over again.

Our boys have always been pretty good sleepers (my mission in life was kids that napped and slept well). That is until lately.

First, lets talk about Brayden. He had been having difficultly going to sleep. Crying and screaming some nights for over an hour. The harder we tried to console him, the more agitated he got. We started him on a low dose of Melatonin (1.5 mg) a few months ago. Give it to him a little before bedtime and he would surrender to sleep rather than fighting it. The melatonin has been helping him go to sleep.

Well lately, he has been waking in the middle of the night. Many a nights it is because of a messy diaper. While it is impressive that he is fussing and crying because he has a dirty diaper (in fact amazing that he is letting us know he wants to be changed), his dirty diapers are an event. The diapers are explosive. Last night (2:00 a.m.) for example, required a full change of clothes, linens, diaper and a sponge bath. After he is clean, he goes right back to sleep.

However, most nights he has been waking a few times, screaming and crying. Jeremy and I both try to console him without much success but we try. We are going to add in another dose of Melatonin if he wakes in the night.

Then we have been told that Brayden has mild sleep apnea. After several hospital stays, the monitors were showing Brayden's oxygen saturation dips into the 80s. We did a sleep study and we finally saw the ENT doctor today. Brayden has tonsils that are a bit large but not something that would cause any major problems. He does not snore and those brief moments of apnea, he recovers on his own. The ENT doctor told us that we could try and have the surgery to remove the tonsils but with Brayden's level of neurological and other conditions (he has hypotonia) having the surgery would probably not make a significant difference. We are NOT putting him through surgery. We will monitor his sleeping at home. If it becomes an issue, he could have another sleep study and re-evaluate.

As if Brayden is not keeping us busy enough during the night, Luke has been sleep walking; starting sometime in December. We have found him, in the middle of the night, sitting in the family room...just sitting on the edge of the couch, in the dark. Or he wanders into our room mumbling something. One night, he went into Brayden's room, turned on his light, swiped one of Brayden's stuffed animals and put in by his own bedside. Another night I found him with two sets of pajamas on...the feet pajamas but his arms were in the feet and one leg was in the arm hole. He woke up that morning quite confused.

Last night, Luke was up and at it. He came into our room. We put him back in bed, he was up and in the bathroom. Finally he was back in bed to stay...then a couple of hours later was when Brayden needed a full changing.

Looking forward to bedtime tonight...it is party time here around the clock.

6 comments:

littleharves said...

harvey was on melatonin and it mostly worked for him. i used to take it too before i had him and i'm not sure if you are aware but one of the side effects can be nightmares? just thought i'd share in case you wanted to mention it for the sleep study.

sleep walking sounds scary too!

night times with harvey used to be awful, there is no way i could have held a job down as we both just slept so randomly, when we could.

Debbie said...

Ha HA HA ....I know your pain...

lately Hudson has had night and day flipped...
staying awake all night til 7am sleeping til 3 (because I wake him over and over again!)

On top of it...my 9 yr old sleep walks occasionally....always walking in my room asking bizarre questions, all confused...

it's a party of another kind in our worlds!!!!

kirstenpetree said...

We give Layne 1mg of melatonin every night. I have figured out now that Layne is off the ketogenic diet that it caused alot of his fussiness and he would wake up screaming too. I don't know why but I think it can make kids more agitated, or at least it did him. Hope sleep gets alot better around there!

Leah said...

ohhhh i would definitely NOT recommend the surgery. your instinct is right. we had wyatts adenoids removed last august and ended up 5 days in the icu. and he still snores. i do hope that all gets a little easier at night...

- leah

Eric said...

About the sleep apnea; have they spoken to you about bipap? I instigated a sleep test because my son suffered Central Apnea for eight years. Out of three usable hours of the test he was found to have 85 episodes of apnea, lasting up to thirty seconds but because of his pharyngomalacia a bipap was contraindicated.
Monitoring his oxygen levels at night is indeed the smartest thing, good luck.

Wherever HE Leads We'll Go said...

Wow! The sleep walking sounds pretty scary! The middle of the night diaper changes don't sound too fun either! I hope the melatonin really does help Brayden to get a good night's rest. It is rough on everyone when sleep is hard to come by!