Monday, May 24, 2010

The seizure that will not stop


In need of prayers,

Brayden is being transported from INOVA Loudoun to Children's in DC.
He has been seizing for over 6 hours.

I will try to recap.
About 2:45 p.m. we (myself and Brayden's nurse) noticed his eyes were looking a little loopy and his legs were jerking. Thinking he might be tired and trying to go to sleep we attempted to rock him and then put him in bed. Once we laid him down, we realized that he was seizing.
We gave him a Diastat, medication to give for prolonged seizures. It did nothing.
We gave him oxygen, not much help.
Called 911.
They arrived and gave him Valium...did nothing. And the seizure was getting worse, harder jerking and eyes doing crazy things.
Arrived in ER.
They gave him a dose of Ativan...did nothing.
Bloodwork came back fine except his white blood cell count was, in their words, "not just high but extremely high", so he must have an infection. He will be put on a general antibiotic and later looked at to find a possible source.
Meanwhile, he is still seizing.
Another dose of Ativan...it took the edge off but he still did not break out of the seizure.
Wait a while, then another dose of Ativan...again took the edge off but still in it.
Transport arrives to prep him for a ride to Children's.
Brayden is given an IV of Keppra and another dose of Ativan...helped a little but still seizing.

It is now 9:30 p.m. and Brayden is on his way from Loudoun to Children's. He is being admitted. We have no idea what the game plan is nor do the doctors. For tonight, they will try to control the seizure. Tomorrow look into why such a bad seizure and a reason for the high white blood cell count.

Pray for his little body. Seeing him in a seizure for so long is scary. Seizures can do some serious damage and he only has so much to work with. Amazingly, with a long seizure and serious medications, Brayden has not shown any signs of respiratory distress. His vitals remain strong but the seizure will not go away.

11 comments:

Debbie said...

Oh my...sick reading what your sweet boy is enduring and what you are witnessing.

Lifting you in prayer and in Jesus care-He is with you and Brayden.

I will pray and pray until another update.

Junior said...

So sorry to hear this, we are praying hard for your little warrior. Lots of hugs.

Mo said...

I feel sick, just sick, reading this. Praying for comfort and control over such a scary time. Consider this a hug...

Slinki said...

Praying hard. God be with you all <3

littleharves said...

i am so sorry for you and your beautiful little brayden, i will pray for him and i have asked some friends to pray also, i hope that this is ok. sending much love , anne xxx

The Henrys said...

Praying for you all....

The VW's said...

PRAYING PRAYING PRAYING!!! This must be so scary for you! Love, Hugs and Prayers!!!

Wherever HE Leads We'll Go said...

I am so sorry to hear this. My heart is aching for you. PRAYING for peace and comfort for you and your family. And for wisdom for the doctors and nurses. Please keep us posted as you can.

kirstenpetree said...

I am so sorry...praying.

Lori said...

Just came across your blog from Littleharves and wanted to let you know that you have someone nearby (MD suburb) praying for your family and your sweet little boy. I've been reading your blog and have just been so touched. I always wonder about how things may have been if Matthew had lived, and though your precious boy is a bit different, I imagine my life might have been much like yours.
Praying, praying, praying for you.

Sarah said...

praying for your family carrie and sweet little brayden!