Thursday, May 27, 2010

In shock

Let me just say that I am shocked that Brayden was sent home. The hospitals treated things so seriously, then he started looking better and they started talking about going home.

Why did they let him leave so quickly? Since seizures are part of his life then there was not much more to be done. The doctors wanted to make sure he came off the heavy medications fine and did not go back into a prolonged seizure. Brayden's neurologist told the doctors she was fine with him going home as long as we were comfortable with it.

The doctors said that Brayden was allowed to go home because he was doing better. We have nursing care, oxygen, monitors and all the gear at home.

Brayden slept great last night and doing fine this morning. Wiped out but fine.

Jeremy and I are still in shock and had a brief moment to discuss the days' events before crashing for the night.

We admitted to being really freaked out. Brayden's daily seizures last about 30 seconds. The prolonged seizures that he seems to have every few months are usually resolved quickly in the ER with a little dose of medication and we are sent home a couple of hours later.

Watching dose after dose being given to him and still seizing...no words to describe our thoughts.
With each dose an explanation of the complications that could come.

The doctor discussing him being intubated...
Thankfully he was not.

Transport to Children's...
Which he has done before but this time with sirens blazing and moving quickly.

Seizing for at least 8 hours.
Eyes rolled back in his head.
No response. Not even to all of the IV tries and blood draws.

Told he was to be in Intensive Care...
With all previous prolonged seizures, they were taken care of quickly in the ER. He has never been in ICU before or even admitted to the hospital because of a seizure.

Everyone treating things oh so seriously.
That tone and look the doctors and nurses give you. The pat on the back, asking me if I was okay.

I will say this once. I did not know how Brayden was going to come out of this. Eight hours of seizing, watching his little body fight to come out and it would not let him...terrifying. It was the first time I was truly scared of the outcome.

Brayden is a fighter. For being so fragile, he is so strong. Thank God for that.

20 comments:

The Henrys said...

I am so glad that you are home and that he seems to be better. I will be praying for you all!

Debbie said...

I always say Hudsons strength comes only from God, he has been through so much and odds are always against him, and yet he is here...Brayden too...God has bigger plans for these boys than we can comprehend!

It is quite shocking to me as well that you are home-but I am glad you have help and the care to be in the comforts of home.

Always in my prayers-hugs to you and Brayden.

Leah said...

and you will all be stronger for it. i hope you have a few minutes to take some deep breaths and relax just a bit. these emergencies are really draining, huh? our thoughts are always with you. :)

A Lil Story said...

oh, wow... just catching up, so sorry you guys went through all that, I can't imagine! Brayden is definitely a fighter, so glad he is okay! you guys are in my prayers~ hopefully you will have some uneventful days to relax and recoup~ =)

littleharves said...

poor little fellow, it must have been heartbreaking for you guys, i'm so glad you are home and hope that he bounces back after some much needed rest. the trials faced by a special needs child and their family's are beyond most peoples comprehension. you guys are doing a great job, sending love, anne xxx

Wherever HE Leads We'll Go said...

I am so glad that you are home, but like you, I am shocked that you were sent home so quickly. What a scary ordeal! I can only imagine how frightening it was to watch Brayden struggle for that long! He has definitely proven to be a fighter. And God has proven that He has plans for him. I will continue to pray for all of you.

Courtney said...

wow, carrie. let yourself feel all the emotions you need to feel...shock, sadness, thankfulness...just let it wash over you...let Him take each one as it comes. praying for you!

Shannon said...

I cannot imagine what the prolonged seizure must have been like for you and Jeremy. I am so glad Brayden is home. You are all in our prayers.

The VW's said...

I was shocked to hear that you were home so soon as well! That's a lot to go through!

Brayden is obviously a fighter and God is obviously watching out for your sweet boy!

Hoping and praying that he continues to do well and no more seizures like that one! Love, Hugs and Prayers!!!

Ampelius Demetrios Guy said...

I wish I...arrrgh. That's a doozy, right there.
However, I don't see why I'm right here right now.

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