Let me just say that I am shocked that Brayden was sent home. The hospitals treated things so seriously, then he started looking better and they started talking about going home.
Why did they let him leave so quickly? Since seizures are part of his life then there was not much more to be done. The doctors wanted to make sure he came off the heavy medications fine and did not go back into a prolonged seizure. Brayden's neurologist told the doctors she was fine with him going home as long as we were comfortable with it.
The doctors said that Brayden was allowed to go home because he was doing better. We have nursing care, oxygen, monitors and all the gear at home.
Brayden slept great last night and doing fine this morning. Wiped out but fine.
Jeremy and I are still in shock and had a brief moment to discuss the days' events before crashing for the night.
We admitted to being really freaked out. Brayden's daily seizures last about 30 seconds. The prolonged seizures that he seems to have every few months are usually resolved quickly in the ER with a little dose of medication and we are sent home a couple of hours later.
Watching dose after dose being given to him and still seizing...no words to describe our thoughts.
With each dose an explanation of the complications that could come.
The doctor discussing him being intubated...
Thankfully he was not.
Transport to Children's...
Which he has done before but this time with sirens blazing and moving quickly.
Seizing for at least 8 hours.
Eyes rolled back in his head.
No response. Not even to all of the IV tries and blood draws.
Told he was to be in Intensive Care...
With all previous prolonged seizures, they were taken care of quickly in the ER. He has never been in ICU before or even admitted to the hospital because of a seizure.
Everyone treating things oh so seriously.
That tone and look the doctors and nurses give you. The pat on the back, asking me if I was okay.
I will say this once. I did not know how Brayden was going to come out of this. Eight hours of seizing, watching his little body fight to come out and it would not let him...terrifying. It was the first time I was truly scared of the outcome.
Brayden is a fighter. For being so fragile, he is so strong. Thank God for that.