These two families, we have known long before children. And now we a extraordinary common bond; special needs children. Not only are they wonderful friends and great support, they are authors.
The McNeils. We meet in college (which seems to be too many years ago).Matt McNeil's book is The Strange Tale of Ben Beesley.
In the spring of 2008, doctors diagnosed Matt and Shannon McNeil’s children with a rare, degenerative, and ultimately terminal genetic condition called MPS III. There were simply no effective treatment options to help them. By the winter of 2009, Matt started writing as a way to put some space between himself and his grief. He wrote THE STRANGE TALE OF BEN BEESLEY about a fly named Ben who sets out to save his friends from a cruel spider’s venom. Although BEN BEESLEY is an exciting adventure story written for middle grade readers (ages 9-12), it is also an expression of a father’s hope for his sick kids. Part of that hope is finding a cure for MPS III, which is why proceeds from the sale of this book will be donated to the National MPS Society to support research. With your help, the next family that receives this diagnosis might also be told about newly discovered treatment options.
You can check out their story and the book at http://benbeesleybook.com/
And they were interviewed on our local NPR, a beautiful interview, you just have to listen.
The Colemans. Whom Jeremy has known since childhood and now they live just a mile from us.Cara Coleman's book is I am Justice Hear me Roar!
A wonderful children's book about Justice, how she is different and how is she the same as other children. A great book to help other children understand disabilities. Super cute book and great pictures (even comes with activities), the kids love it.
You can her out on amazon.
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