Well a 24 hours in the "special" roommate PICU room has been a treat. We didn't realize how good Brayden had it in his private PICU room for the past several days.
That 24 hours seemed like the longest 24 hours of being here.
But Brayden has moved up to the general floor this evening.
He has had a good day. He just seems frustrated with being here and being messed with. All of his numbers are looking good and he is almost up to the normal feeding rate through his j-tube. Still on some IV fluids. We have still been waiting for the GI to take over or at least relay a plan for Brayden's GI motility problems. I am a little okay with not seeing the GI doctor that is doing rounds, he has reminded me of why we switched Brayden's GI doctor several years ago. But I do want a plan to see the Motility GI doctor when we get out of the hospital.
Only one nurse has told us that he may go home tomorrow so we are holding on to that. No one has said it since but we have high hopes to get outta here. Everything they are doing for him, we can do at home (other than the IV and he is not getting much through it).
The new room is quite spacious. It should be a good night sleep. And since he is no longer in the PICU he should be left alone for the majority of the night. But right now he is screaming and I don't know how to comfort him.