First, I needed to convince Brayden he was going to be fine and this doctor was not a special place of torture...it took him a while to believe me.
Second, we talked with the doctor about several things.
- Weight gain - since the winter, Brayden has gained almost 18 pounds. That seems to be too much, too fast. Brayden is busting out of his pants (had to look at husky sizes) and even busting out of his wheelchair. So he suggested we look at Brayden's thyroid. Start with blood work.
- Nutrition - Brayden's weight gain is huge for only getting 875 calories a day. We are trying to find a special nutritionist through Children's that can help.
- Bowel movements - you cannot come to this blog without knowing poop is always a topic of discussion in our house...part of having all boys and having to watch Brayden's output. Brayden has NOT been having bowel movements on his own for several months. Big doses of Miralax and needed enema for him to go. The problem is, his bowel movements are always very liquid. His body does not seem to know if/how/when he should poop. So we are looking into another medication to hopefully stimulate bowel movements.
- G-tube - his Mic-key button for his g-tube has been bleeding and causing problems. His j-tube has been looking fine. We will try a bigger size, ordering a new one with our medical supplies and will try it out next week.
After the appointment, I dropped Brayden off at school. I have been hearing that he has done well in a different stander this year. They loaded him up in a Supine Stander.