Our day started off slow...meaning slow moving traffic...we were on the road for 2.5 hours. My dad joined Brayden and I so it helped with the long ride. We were late for the appointment and then the front did not have Brayden on the schedule, so he needed to be cleared before going back. We ended up being about one hour late for the appointment.
We finally made it back. Talked with the dietitian and then one of the neurologist that heads up the ketogenic clinic. We went over Brayden's medical history. They talked about the diet. It requires 3-4 days in the hospital. Once home, weighing and measuring liquids to put into he feeding bag. Checking his blood sugar and urine.
Then we headed upstairs for lots and lots of bloodwork as well as a urine sample (oh that is fun).
The goal is to decrease Brayden's seizures...Brayden's neurologist is hoping that a by product of it could be to help decrease the vomiting if it is coming from some unknown neurological cause.
The ketogenic team did not declare Brayden a candidate for the ketogenic diet. Since he has had pancreatitis from an unknown cause and his chronic vomiting, it could make it worse but they do not know. They will talk with Brayden's neurologist and give us a call sometime next week.
It was a long day.
1 comment:
Sounds like a VERY long day! So frustrating when the professionals cannot figure out what to do! I pray that they are able to come up with a clear answer so you can make a wise decision.
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