Seconds after I posted the previous blog (check it out, it is a cute video of Brayden and Luke), I received a phone call from Brayden's school. He had a big seizure on the school bus and freaked out the bus driver and bus attendant. Once he got to school he was extremely uncomfortable, then they called me to come in to the school. Luke, who does not have preschool today, and I jumped in the car.
Luke and I arrived at the school to find Brayden still in a seizure. They said he had been like that since he came off the bus. This seizure is kind of new. It is almost like he is trying and trying to break out of a seizure; squirming up and down, legs tight and seemingly agitated as if he is trying to sleep but cannot. I gave Brayden his rectal dose of Diastat (med for prolonged seizures) and loaded him in to the car. He was still seizing but I assumed he would come out of it soon, just as he has in the past. We were barely a mile from the school when Brayden started having breathing troubles.
He has NEVER had breathing problems with any seizure. Never, ever had breathing problems.
He was gasping for air and his color was changing.
I hardly ever freak out about Brayden's medical things. We can manage most of them and even if we cannot and need to go to the hospital, we know the routine and what Brayden needs. It doesn't freak me out.
This FREAKED me out!
My conversation with myself, in my head...
"Ok, he is not breathing. I am freaking out, really freaking out. Can I drive safely to the ER? Should I pull over and call 911. Ok, you are only a couple of miles from the hospital, you can get him there. Freak out later."
We drove straight to the ER and as we pulled up a nurse was walking in. I yelled, "I need help my son is seizing and having problems breathing!" She rushed over and scooped him up. Luke and I followed her right into a room in the ER.
Brayden was starting to settle down shortly after arriving. We figured he had been seizing for about two hours. Thankfully, his breathing was getting better and the seizure was fading away. Thank goodness.
He was tested for some viruses, flu, etc. And they monitored him for a couple of hours. Everything came back fine and he was discharged. The ER pediatrican spoke with Brayden's neurologist and the neurologist made changes to two of his medications. Of course we will be following up with the neuro doctor soon.
Jeremy came and picked up Luke, who is thrilled to be hanging with daddy. I drove Brayden home. Brayden has been all smiles and quite happy since coming off of the medication. I on the other hand feel like I need a good cry.
I just never freak out with his stuff. This really rattled me. Pray that this breathing problem was a one time incident. Seizures with breathing problems is a huge problem, one that we do not want to deal with...at all.
7 comments:
oh no, I'm so sorry this happened. Will be praying for you guys!
so glad everything turned out ok...i was praying!!
i need to give you my phone number so you can text me when stuff like that happens and i can pray right then! so sorry for your scary adventure. will really be praying this was only a fluke one time incident! love to you!
Carrie, I truly don't know how you handle all of this so gracefully. This sounds like quite a scary episode. So many prayers are being said for your family.
Carrie, My heart goes out to you with the seizure/trouble breathing episode that Brayden (and you) just experienced. I can relate to what it feels like because my own child, Matthew, who has ACC, also had breathing problems with his seizures. I can still remember those 911 calls and rides in the ambulance to the ER. I would be very scared on the inside but yet somehow remained calm on the outside answering all the questions from doctors in the ER while everything was going on. BUT, when it was all over and we were at home and a few days had passed I always felt like you wrote...like I had to let it all out and maybe even cry.
You and Brayden are in my prayers and I pray that God will take away all of your fears and that Brayden's seizures will be controlled completely with no more breathing problems. †
Sandie
"Fear not, for I am with you; be not dismayed, for I am your God;
I will strengthen you, I will help you,
I will uphold you with my righteous right hand."
~Isaiah 41:10
"Cast thy burden upon the Lord, and He shall sustain thee: He shall never suffer the righteous to be moved."
~Psalm 55:22
"Peace I leave with you. My peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid."
~John 14:27
"Thou wilt keep him in perfect peace, whose mind is stayed on Thee."
~Isaiah 26:3
Wow! Carrie, it has been awhile since I have had a moment to sit and read your blog. It was stressful for me to just read about these moments that you experience daily...you are in our thoughts and prayers and Praise the Lord that you were close to the hospital!!
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