Wednesday, September 10, 2008

Tolerate

*Update Sept 11
Brayden was able to tolerate his feeds so he was discharged. He is home and doing well. This is his new hardware.
Gastric - into his stomach
Jejunal - into his small intestine
Bal - checks the water balloon that helps hold it in from the inside

He will be on 20-22 hour continous feed.

Anyone that has experience, advice or comments about this please pass along. We have only come across a couple people whose child has had one. Post in the comments or email, thanks for your help
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Brayden had his G-tube removed and received a G-J tube. The hospital stay has been/will be about 6 days. Starting with IV fluids, scope to see his digestive system, placement of the J-tube and some feedings to make sure he can tolerate the feedings going into his small intestine.
I cannot even begin to describe G-J tube. It is much bigger than the mickey button he had for the G-tube. We have requested a full tutorial on the new tube. We want to know all about it.
Brayden is doing amazingly well and tolerating everything with flying colors. I mean that he is tolerating the hospital experience, the constant vital checks, nurses & doctors poking at him, not eating for a few days, sleeping in the hospital crib, noises of having a roomate, etc. He is tolerating it all, even making his happy noices and smiles this morning, despite what his body has gone through.
The next couple of days he will be watched to determine if he can tolerate the feeds.

5 comments:

Ms. Beane said...

I found your blog through Beth D. and I must say I have read it all in two days. You and your family are in my heart and prayers.

with love from Maine.

Jacki said...

I found your blog through Blog around the World and I am so glad I stumbled upon it.

What part of VA do you live in? I am in Warrenton, but work in Dulles.

I am praying for you, your family and your sweet little boy.

AudreyO said...

I found your blog through the mom blogs. Sending lots of prayers out to you and your family.

Christine said...

I really hope that Braden does well with the feeds. Although my daughter Regan never needed any feeding tubes we did deal with some reflux with her cerebral Palsy. Good Luck, and I will keep checking into see his progress

Debbie said...

That just looks so intimidating to me for such a little guy. But it is for the best. I am and will continue to pray for you guys. Big cyber hugs!