Brayden is going in for Botox in both legs, on
Brayden was also fitted last week for a DMO suit. This is a full body suit, like a short sleeve and shorts wet suit. The idea is to provide much more stability to his core and help align his spine. I cannot even begin to explain it because I have yet to see one (you can check out this link, if you are interested). It required a lot of little tiny measurements. It will have snaps at the legs for diaper changing and flaps on his stomach for his two feeding tubes. The goal is for him to wear this suit all day, only off at bedtime. It sounds like a big pain but if it helps Brayden, we will certainly use it.
Then the vomiting....honestly I am just going to get him past the Botox procedure and then really talk to the GI doctor.
On top of things, my birthday was last week, which was just another day. Carter and Luke started their football season (practice every night), my car had big troubles and I spent quality time with the AAA guy because I could not even make it to the car shop...I felt like I was loosing myself in the chaos. And if I had one more person tell me they were tired, I was going to loose my cool.
Being a mom is a full-time job, any mom knows that...it is not something that ever stops. On top of that, being a mom to a special needs guy...well, it is all consuming. I operate at a level of stress that is just always there, sometimes it feels like it is just too heavy or times it is just "normal".