A long, long day

This is one tired boy.

His day started at 3:00 a.m. with him screaming in pain. It is now around 8:00 p.m. and he is still screaming in pain.

Brayden is a seriously tough guy. He rarely screams in pain despite all that he is put through on a regular basis. He may fuss and cry but screaming like this...I can count on one hand how many times he has screamed like this. Just two weeks ago while at the hospital, he handled everything with only a fuss when it was IV time.

We have no idea what is causing his pain. And now we are discussing/arguing with the doctor about giving him something more than just Tylenol. Thankfully the nurses are helping our cause.

Besides all of that, Brayden had an MRI today. Actually two MRIs, the brain and the abdomen. The brain MRI was about one hour and the abdomen about another hour. Thankfully they were able to get them done at the same time, total of 2.5 hours to include anesthesia. We have talked with neurologist here at the hospital (I have no idea who he is) about Brayden's medical history and the vomiting. He was able to review the MRI and did not see anything that would be directly causing the vomiting from the brain. We will be getting a copy and send it on to Brayden's neurologist at Children's for her review as well.

The MRI of the abdomen has not been reviewed with us yet. Guessing they will be by tomorrow morning with some information about it.

Brayden's pancreatic levels are still high. Brayden was still having some seizures and still freaking out the doctors/nurses and that is how we got the neurologist to speak directly with us. Thankfully the seizures have been under control for most of the day. Brayden had a little breathing difficulty after the anesthesia from the MRI and was put on oxygen for a bit but then recovered just fine.

And now we wait for something, not sure what that something is but hopefully it is something. We do know that he will be here until at least Monday.

This is one tired daddy.