Oh the BiPAP

A talk with the sleep clinic, the doctor asked how we were sleeping.  My reply, "I am absolutely exhausted now that Brayden is sleeping better."

It has been several weeks now that Brayden has been sleeping with his BiPAP.  There may have been several nights I was ready to toss it in the trash.

Keeping the mask on him has been a difficult task, to put it nicely.  He fights it for the first hour or so, then finally falls asleep.  Normal movement and waking in the night, the mask shifts.  It ends up over his eye or mouth or down around his neck.  I stay up very late to keep adjusting the mask, trying to not wake him.  Then I wake up 1-2 times when Brayden cries/shouts because the mask has moved.  Then Jeremy is up around 4:30a.m. to leave for work, adjusts the mask or just takes it off.

A call from the sleep clinic to discuss how Brayden is doing.  Brayden's numbers while sleeping with the mask look really, really good.  He is actually breathing quite well.  So that makes me feel at least a little better about the mask.  He is sleeping better, and it is quality sleep.

We continue to adjust the mask.  We have taped the top of the mask to itself in hope of making it tighter around his tiny microcephaly head...that is helped keep it in place.

For the last week Brayden slept with the mask on for the entire night, with only a couple of adjustments here and there.  He is tolerating it much better and I am as well.

A goodnight sleep is such a great thing.