Thursday, April 23, 2015

Those motility issues

Brayden has not had a bowel movement on his own for over 9 months.  It requires a lot of help on our part for him to actually go.
We have tried:  Miralax, Lactulose, Senokot, Enemas, Magnesium Citrate, and many other things.  It really has nothing to do with the stool.  His brain/body just does not tell him that he needs to have a bowel movement.  Since Brayden was about 13 months old, we have seen the slowing down of his GI system.  The stomach, intestines and now his colon has slowed down dramatically.

We meet with Brayden's GI doctor, that we have been with for years, to go over Brayden's GI history.  We are trying to prep for a meeting with a motility clinic at Children's National.  This clinic is relatively new, no one seems to know much about it.   Brayden will be going to this clinic in a couple weeks.  Meanwhile we are still working on the paperwork for the big motility clinic at Nationwide Children's in Ohio.

We talked with Brayden's GI doctor.  Brayden's GI system has gone through a lot in eight years.  Scopes, testing, studies, g-tube, g-j tube, j-tube, suctioning, draining, medications...

I hope to put together a summary of Brayden's GI history to send to the motility clinic in DC before we meet with them.

In order to understand Brayden's GI system in its current state, it looks like Brayden will have to go through more testing and studies, some rather invasive.  It also looks like Brayden is heading toward a colostomy bag, actually there are some alternatives to a colostomy bag but all something similar.  Two of Brayden's doctors have already started prepping us for this idea.

We will see what the clinic at Children's National in DC has to say.  Then we still plan to see the Motility Clinic in Ohio, but that will take months before Brayden gets an appointment.

Pooping is a very important part of one's life...

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